Right after a chat with a person online (thank you) I have decided to go public with what is happening in the last year..... over the past year/18 months my health has steadily gotten worst and worse... Basically what has happened is that i have now found out....a very low white cell count.....chronic Neutropenia, what this is doing is it means that i have trouble fighting virus's.. it is also having the lovely effect that it is shutting down my immune system... and is also shutting down the circulation system...... this mean my body was putting out the smell (odor) that i was not aware off...... i am going to put up a post on both sites now as I am just sick of the whispers, so please stop them now.......that is why i have taken a lot of time out... and i haven't gone to meets, I have good days when i am right as rein and vibrant... i have bad days where i have no energy and i don't want to move......... I am now seeing an immunologists and dermatologists........ it is an ongoing issue........I would appriate your support at this time, I suppose this is where i find out where my true friends are........ sean xxxxxx
Quote by fabio grooverider I am just sick of the whispers, so please stop them now......
FFS!!! People just don't read the rules do they?? Everybody knows there is no whispering allowed!!!! :? :? :? :? :? Big (manly) hugs from me Fab :lol: :lol: :lol: :lol: :lol:
Sean, you were one of the first people to ever interact with us when we first joined this site as Katie & John, through all our trials and tribulations you were always there with spot on advice, tea crumpets and sympathy. If there is anything we can do, just holler mate. long term illness can be so debilitating, trust me, I know, and it has many more far reaching negatives than people imagine, i.e. financial, work, lifestyle, inner happiness etc. just know that there are real people on this site who genuinely care mate, at this time all I can say is that I hope things turn the corner soon for you. Your a fighter and major respect for trying to remain the top bloke you are despite your troubles, and thank you for sharing this as it does explain a few things to those like us who have missed your input, advice and generally good humoured banter. take care of yourself mate xxxx Caron (by proxy) and Pete
Gutted to hear this matey but being honest I didn't hear the whispers either.. sounds awful but knowing how things are medically today I bet they will have it sorted double time quick.... Best wishes from us and hoping you a speedy recovery. Mike and Julie xx
HI Mate I'm sorry to hear your bad news. With Caz recovering from Leukemia i know a little of what it must be like for you, one of the side effects of her treatment is that it can make her Neutropenic. I know through watching her how hard and damn frustrating it can be to be as right as reign one minute and down the next. I also know your a good guy and a strong fella like myself and I'm sure you will overcome this with the help of your docs and friends. You know where Calista and I are if you EVER need/what to talk, even at 3am All the best mate and hope to see/speak soon Pete
Hey Sean. I can't offer any nursing support (sounds like you've got that covered anyway :twisted: ) so all I'll say is get well soon from me and the Mrs.
Hiya Barry!!!! So sorry to hear your not so good (I hadn't heard the whispers either). This malady seems to be more prolific that we realise. You are the 4th person from here that I have heard of with this in the last few weeks. Regardless, I wish you a very speedy recovery. Hugs from your friend, Helen
Sean, We've never met but somehow I feel I know you 'cos you wear yer heart on your sleeve and you're a great guy. Not much I can say that'll help you in your predicament except to say that my and Mrs TE's thoughts are with you - hope you recover soon.
Well you kept that quiet..... Glad that you were well enough to attend the Bristol munch Guess my ass will be safe from you for a while But hey Dave & I wish you a speedy recovery :therethere: take care Sean :rose:
Hi, Sorry to hear the news and I have to say well done to be brave and speak about it. I hope its only an infection that can be more easily cleared up? Do you know the cause of it yet? At least they have identified the problem and despite everything you might read about the NHS you are in good hands. Wishing you a speedy recovery! best wishes, Shay
I'll answer a lot of questions that I have been asked in the last few hours........ How serious it is.... it is a blood disorder so yes it is serious enough....I have what they call "Chronic Moderate Neutropenia"..... The "Chronic" bit meaning I have had it more than 3 months.....if it less than that it is called "Acute" The "Moderate" bit meaning the amount of "neutrophils" white blood cells... they measure it in 3 cateorgies.... "Mild" between 1000 and 1500, "Moderate" between 500 and 1000, and "Severe" is under 500........ to put it in context, the average person has anywhere up to 7000 of these blighters... it is gets to the "severe" stage, it can be considered to be life-threatening... my last count was 875 so not the best ever... Am I contagious????...... No!! in fact the people around me are likely to be more damaging to me, than I am to them!!! where you fight off stuff like colds and flu's easily... my body struggles, where you have the cold for a few days, I may have it for a few weeks... When will I be better???.........well how long is a piece of string?? beacuse it can be brought on by a multitude of things, it is a case of living with it as far as I have read so far.....you can fight the infections such as cold/flu ect using anti-biotics... but the same anti-biotics can have a detremental effect on the white cell count.. so it is very much give and take in some "acute" cases it has been known to right itself..... Basically I have my good days, I have my bad days... so same miserable sod as ever.... If anyone else has any questions then please feel free to pm me.... sean xxxxxxxx
OK you miserable sod... get yer ass back in gear... I dont want anyone else to mistake me for you at munches!!! best o luck matey! hope to see ya in june!!!
well i don't know u but hope u get it all sorted asap.....its not fun being ill i know that for one......... just a small point from ur post thou........antibiotics aren't for colds etc.......people should only take them if they really need to........i am by no means a pharmacutical expert but the best thing for a cold.........is paracetomol.......bed.....and plenty of fluids hope u get better soon hun....... :lol:
Hi .. sorry to hear your ill. I know all about this immune thing and white blood cells. I'm on drugs to slow my immune system as my body attacks itself for no reason. So if someone looks at me with a cold thats it i'm sneezing. If you want a chat about things or a laugh to take your mind off it then give me a ring. Take care .. luvs and hugs
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don't worry about rumours, just peoples ignorance coming through 
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